Disclosure of ASD Diagnosis to Children and Adolescents

Marcia Eckerd, PhD

Citation

Eckerd, M. (2019). Disclosure of ASD diagnosis to children and adolescents. Journal of Health Service Psychology, 45, 17–22.

Abstract

Clinicians facing the challenge of disclosing the diagnosis of ASD Level 1 to a child or teen often struggle to determine whether or not this would benefit the patient and how best to do it. Considerations include when and what to disclose as well as effects of disclosure. Both parents and patients need help in processing this diagnosis, which can be seen as overwhelming and life changing.

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References

Attwood, Tony. (2018). ASD Level 1 (Asperger’s) Special Interests, Independence and Interdependence, AANE Daniel W. Rosenn Connections Conference, Boston, MA, October 15.

Baio, J., Wiggins, L, Christensen, D., Maenner, M., Daniels, J., Warren, Z., Karzius-Spencer, M., Zahorodny, W, Rosenberg, C., White, T., Durkin, M., Imm, P., Nikolaou, L., Yeargin-Allsopp, M., Lee, L., Harrington, R., Lopez, M., Fitzgerald, R., Hewitt, A., Pettygrove, S., Constantino, J., Vehorn, A., Shenouda, J., Hall-Lande, J., Braun, K., & Dowling, N. (2018). Morbidity and Mortality Weekly Report  67(6) 1

Baron-Cohen, S. (2000). Is Asperger syndrome/high-functioning autism necessarily a disability? Development and Psychopathology, 12(200) 489-500

Brogan, C. & Knussen, C. (2003) The disclosure of a diagnosis of an autism spectrum disorder Autism SAGE Publications and The National Autism Society  7(1) 31-46 ; 0310121362-3613(200303)7:1

Calzada, l., Pistrang, N. & Mandy, W. (2012). High-Functioning Autism and Asperger’s Disorder: Utility and Meaning for Families. Journal of Autism and Developmental Disorders 42:230-243 doi: 10:1007/s10803-011-1238-5

Eckerd, Marcia (2018) Identifying Autism Spectrum Disorder (Level 1) in Adults. Journal of Health Service Psychology 44: 93 – 100

Howlin, P, Asgharian, A. (1999). The Diagnosis of Autism and Asperger Syndrome: Findings from a Survey of 770 Families. Developmental Medicine & Child Neurology 41: 834-839

Huws, J. & Jones, R. (2008). Diagnosis, disclosure, and having autism: An interpretative phenomenological analysis of the perceptions of young people with autism. Journal of Intellectual and Developmental Disability 33 (2): 99 – 107 doi 10.1080/13668250802010394

Jones, L., Goddard, L., Hill, E., Henry, L.,&  Crane, L. (2014). Experiences of Receiving a Diagnosis of Autism Spectrum Disorder: A Survey of Adults in the United Kingdom. Journal of Autism & Developmental Disorders 44:3033-3044 doi 10:1007/s10803-014-2161-3

Jones, G. (2001). Giving the diagnosis to the young person with Asperger syndrome or high functioning autism: issues and strategies. Good Autism Practice Journal www.bild.org.uk/

Loomes, R., Hull, L., & Mandy, W. (2017). What Is the Male-to-Female Ratio in Autism Spectrum Disorder? A Systematic Review and Meta-Analysis. Journal of the American Academy of Child & Adolescent Psychiatry 56 (6) 446 -474

Molloy, H. & Vasil, L. (2002). The Social Construction of Asperger Syndrome: The pathologizing of difference?  Disability and Society 17 (6) 659-669 doi: 10.1080/0968759022000010434

Mandel, D., Novak, M., & Zubritsky, C. (2005). Factors Associated with Age of Diagnosis Among Children With Autism Spectrum Disorders. Pediatrics, 116 (6) 1480-1486 doi: 10.1542/peds.2005-0185

Russell,G. & Norwich, B. (2011). Dilemmas, Diagnosis and De-stigmatization: Parental Perspectives on the Diagnosis of Autism Spectrum Disorders. Clinical Child Psychology and Psychiatry 0 (0) 1-17 doi: 10.1177/1359104510365203

Sandler, S & Rosenthal, M. (2015). Should Parents Tell Their Children They Have Asperger’s? Autism Spectrum News, 7 (4) Mental Health News Education Inc. Effort, PA

Xu, F., Strathearn, L. Liu, F., & Bao, W. (2018). Prevalence of Autism Spectrum Disorder Among US Children and Adolescents, 2014-2016. Prevalence of Autism Spectrum Disorder Among Children 8 Years – 2014. Journal of the American Medical Association 319 (1) 81

Zablotsky, B, Black, L., & Blumberg, S. (2017). Estimated Prevalence of Children With Diagnosed Developmental Disabilities in the United States 2014-2016. National Center for Health Statistics Data Brief, U.S. Department of Health And Human Services Centers for Disease Control and Prevention 291